6 months off!!

Marshall had his cardiology check up today.  He did GREAT, his oxygen sats read 97, 98.  Dr. K thinks his fenestration is now closed. This happens if the pressures in his heart are low enough and blood isn’t being shunted through the fenestration.  It’s good news as long as he doesn’t develop any effusions.  So far it looks like he’s tolerating just fine.  If he needs his fenestration in the future they can make one and put a stent in via cardiac catheter but hopefully that won’t be necessary.  He’s has grown over an inch and gained 2 lbs since our last visit in June…  Whoa!  I thought he looked bigger!!!  So he won’t need a checkup again for six months.  At which time he will get the whole shebang; EKG, echo, blood work, and a new test called a holter monitor.  I’m not sure exactly what this entails I think it’s like an EKG he has to wear for 24 hrs.  He will now have this done yearly for life.  I remember reading stories about single vent kids wearing these to school…  Looks like Mars will be an ol pro at this test as well.  We are very happy Marshall has completed his journey of the treacherous terrain known as Mt. Fontan, now life continues with all the strength and wisdom he’s acquired on this trek.  Thanks for reading and God Bless!!   

 

Eating cafeteria cake yummm